Winnie Achieng

Secretary

Personal Lupus Story

When pain becomes your order of the day, then you realize that your days become disordered. My diagnosis with lupus was the beginning of an end to unknown pain and a transition to many unpredictable and challenging days. It was an overwhelming switch and complete overhaul of my once active, spontaneous, and carefree life. Carefree in the sense that I did not really give much thought about what I ate, physical exercise, and my interactions. I relished all kinds of delicacies and I guess my body structure allowed me to partake of any food. I really did not bother about weight issues and I was blessed with a flat tummy even after two children. Fantastic right?

My diagnosis took almost five years. In retrospect, I realize that the disease may have found its way into my system a while back. I recall having occasional joint pains, coldness, and numbness of the fingers and toes- I always had gloves and socks in my handbag- and unexplained fatigue. I had been treated for bacterial infections, I think antibiotics knew me by name. After a series of hospital visits and being treated for numerous diseases from nerve disorders, enlarged ovaries, pneumonia to magnesium deficiency, I experienced the rash. The facial rash is the most distinctive sign of lupus. It resembles the wings of a butterfly unfolding across both cheeks. That was my turning point. Everything changed and my life went through a metamorphosis. And like a butterfly, I began to experience life in a way that I never imagined.